The optimal management of CF exacerbations (flare ups) is unknown and there is a lack of high-quality evidence from clinical trials to help guide doctors in prescribing different treatments. Every exacerbation has the potential to cause damage to the lungs and airways, so answering these questions are crucial for better medical management of CF.
Our vision is to:
Establish a clinical database (within the BEAT CF Platform) to capture medical information and treatments received for exacerbations
Implement a healthcare-embedded adaptive platform trial to systematically evaluate multiple treatment options across different ‘domains’ (e.g. antibiotics, anti-inflammatories, mucolytics etc.)
Implement trial findings back into routine care in a timely manner with an overall aim to improve the management of CF exacerbations
The BEAT CF trial will begin enrolling in mid 2020, with the aim to expand to other major CF centres around Australia. Please see below for a list of active BEAT CF sites.
Sydney Children’s Hospital, Randwick (SCHN)
Sir Charles Gairdner Hospital
BEAT CF community
We strongly believe that high quality clinical trials are founded on community involvement. Mitch Messer is the BEAT CF Consumer Advisor. Mitch acts as a bridge between the project team and CF community to ensure their needs are communicated and delivered. In addition to this, we have 3 national BEAT CF Community Reference Groups (CRG) to represent the consumer voice and ensure the project is designed with the CF community in mind.
BEAT CF Consumer Advisor
BEAT CF Adult CRG Members
Chair: Sophie Longton
BEAT CF Parents & Partners CRG Members
Chair: Kate Spaapen
BEAT CF Youth CRG members (ages 13-25)
Chair: To be advised
We are searching for more members to join our BEAT CF Youth Community Reference Group. If you have CF and you’re aged between 13-25 years, we’d love to hear from you. Please get in touch below to express your interest in becoming a member.