Survey to find out what matters most to people with CF

September 15, 2020 | 0 comments

Researchers from Telethon Kids Institute are conducting a survey to understand what health outcomes are most important to people with CF.

Often, researchers decide on outcomes for clinical trials without community input. This 12 question survey will help inform what outcomes are important to consider from the community perspective in terms of clinical trial outcomes and endpoints. The questions present imaginary scenarios to help people choose which outcomes are most important to them.

People with CF aged 13 and up, and carers of people with CF (between 0 and 18 years) are invited to take part. To visit the survey, please click on the link below.