Researchers from Telethon Kids Institute are conducting a survey to understand what health outcomes are most important to people with CF. Often, researchers decide on outcomes for clinical trials without community input. This 12 question survey will help inform what...
We are excited to announce that the BEAT CF platform has received ethical approval from the Child and Adolescent Health Service Human Research Ethics Committee at Perth Children’s Hospital. The ethical approval was given for the data collection phase of the study and...
The BEAT CF investigator team has published a paper in the Journal Frontiers in Pharmacology. The open access article explains the need for novel trials in cystic fibrosis and provides a foundation for the BEAT CF study. The article also explains benefits of a REMAP...
Members from the BEAT CF research team attended the 2019 Australasian CF conference, Perth back in August. We were able to schedule a face to face meeting with BEAT CF investigators attending to get feedback on the platform construction and data analysis. Special...
